The Program regularly communicates with all families. We send out monthly newsletters by email. We have a monthly Bridge call where we discuss topics that families have asked about. For the Bridge calls, we often bring in subject matter experts and make these calls interactive with time for questions and answers. We also post announcements and other information our website. We post meeting minutes from our Family Advisory Committee meetings and Board of Directors meetings on our website. Our You Tube page has recordings of Bridge calls and other meetings.